About this Event
The Neuromuscular Network brings together paediatric neurologists, consultants, AHPs, and CNSs across London to share best practice, discuss complex cases, and develop care pathways for children with neuromuscular conditions including SMA and DMD. The aim of this meeting is to provide updates on diagnosis and management, facilitate shared learning through case discussions, and plan future network priorities.
The event is delivered in partnership with Muscular Dystrophy UK has been sponsored by the following companies: Biogen, Santhera, Italfarmaco, Lupin and Stirling-Anglian. The companies have had no input or influence on the educational content or the agenda of this meeting.
Agenda
🕑: 08:30 AM - 09:00 AM
Registration and refreshments
🕑: 09:00 AM - 09:15 AM
Welcome and introductions
Host: Dr Pinki Munot, Consultant Paediatric Neurologist
🕑: 09:15 AM - 09:30 AM
Background and purpose of the Network
Host: Dr Pinki Munot, Consultant Paediatric Neurologist
🕑: 09:30 AM - 10:00 AM
Advances in diagnosis and management of Spinal Muscular Atrophy
Host: Dr Mariacristina Scoto, Consultant Neurologist
🕑: 10:00 AM - 10:30 AM
Case discussions and shared learning from Spinal Muscular Atrophy
Host: Nikki Cornell, Neuromuscular Research Fellow
🕑: 10:30 AM - 11:00 AM
Coffee break
🕑: 11:00 AM - 11:30 AM
Diagnosis and management of Duchenne muscular dystrophy inc common emergencies
Host: Professor Francesco Muntoni, Consultant Neurologist
🕑: 11:30 AM - 12:00 PM
Case discussions and shared learning from Duchenne muscular dystrophy
Host: Professor Giovanni Baranello, Consultant Neurologist
🕑: 12:00 PM - 01:00 PM
Lunch
🕑: 01:00 PM - 02:00 PM
London Network priorities from paediatric and hospital perspectives
Host: Dr Kerry Robinson, Consultant Paediatrician
Info: 1) Hospital Perspective (Dr Kerry Robinson, Consultant Paediatrician)
2) Community Perspective (Dr Hecate Diaz, Consultant Paediatrician and Dr Liz Homer, Consultant Paediatrician)
3) Open discussion on pathways (Olivia Martineau, Physiotherapist)
🕑: 02:00 PM - 02:30 PM
Coffee Break
🕑: 02:30 PM - 03:30 PM
Workshop: Revisiting pathways for Spinal Muscular Atrophy
Host: Dr Adnan Manzur, Consultant Neurologist
Info: Part 1) Diagnostic referral pathway for Spinal Muscular Atrophy (Dr Adnan Manzur and Isabella De George)
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Part 2) Management of Spinal Muscular Atrophy for Consultants and Allied Health Professionals (Dr Adnan Manzur and Olivia Martineau)
🕑: 03:30 PM - 03:45 PM
AOB and Closing
Event venue & nearby stays
30 Euston Square, 30 Euston Square, London, United Kingdom
Concerts, fests, parties, meetups — all the happenings, one place.