About this Event
We’re really pleased to invite you to our first in-person Cavernoma Alliance UK Conference since 2019.
Join us on Saturday 3 October 2026 for a full day of talks, discussion and connection, bringing together people affected by cavernoma, families, clinicians and researchers. The programme includes talks from leading experts, practical sessions, time to ask questions, and space to connect with others who understand.
The conference will take place at the fully accessible NCVO offices in central London, just a short walk from King’s Cross and St Pancras stations.
We know not everyone will be able to attend in person, so we’ll be recording key sessions and sharing these after the event. Free concession tickets are also available to anyone who needs one.
If you have any questions, please email [email protected]. We’d love to see you there.
Agenda
🕑: 09:00 AM - 10:00 AM
Registration and Refreshments
🕑: 10:00 AM - 10:50 AM
Cavernoma 101
Host: Professor Diederick Bulters
🕑: 10:50 AM - 11:00 AM
Break
🕑: 11:00 AM - 11:50 AM
Could Aspirin Reduce Bleed Risk?
Host: Professor Rustam Al-Shahi Salman
🕑: 11:50 AM - 12:00 PM
Break
🕑: 12:00 AM - 12:50 PM
Buffet Lunch
🕑: 12:50 PM - 01:50 PM
Choose Two Sessions
Info: Session topics include: Ask the expert, Women’s health and cavernoma, Practical tips for supporting a child with cavernoma, Healthy eating with cavernoma, and Mindful breathing
🕑: 01:50 PM - 02:00 PM
Break
🕑: 02:00 PM - 02:50 PM
Cavernoma and Your Future: Insights from Natural History Research
Host: Dr Kelly D. Flemming
🕑: 02:50 PM - 03:00 PM
Break
🕑: 03:00 PM - 03:50 PM
Could Gene Therapy Cure Inherited Cavernoma?
Host: Dr Ellie Chilcott
🕑: 03:50 PM - 04:00 PM
Break
🕑: 04:00 PM - 04:50 PM
Annual General Meeting
Host: Heather Dunbar, Chair of Trustees
🕑: 04:50 PM - 05:00 PM
Closing Remarks
Event venue & nearby stays
NCVO, 8 All Saints Street, London, United Kingdom
Concerts, fests, parties, meetups — all the happenings, one place.