About this Event
This is a hybrid event. Please register via Eventbrite or contact us at [email protected] if you wish to attend online.
A Zoom link will be provided to registered virtual attendees in advance of the event.
St. Vincent’s University Hospital is the lead centre for adult rare bone services in Ireland, providing specialist care for adults living with rare and complex bone conditions. The service works with national and international partners to improve clinical care, research and patient involvement, including through EuRREB – the European Registry for Rare Endocrine and Bone Conditions.
This Information Day is an opportunity to learn about current research and clinical services, and to have your say in how we approach people about research. As we expand our research into other rare bone disorders, we want to hear what matters to you — what would you want to know before deciding to take part in a study, clinical trial or registry?
The day will also provide a space for patients, families, healthcare professionals and researchers to connect, share experiences and contribute to the future of rare bone disease care and research.
Event venue & nearby stays
St. Vincent's University Hospital, Elm Park, Dublin 4, Ireland
Concerts, fests, parties, meetups — all the happenings, one place.