About this Event
Are you an Acromegaly patient? Acromegaly Community knows that living with a rare disease can be difficult to navigate. Please join us and take this opportunity to learn about the proper management of Acromegaly from top physicians. This conference focuses on education as well as communal and emotional support for patients. Join us as we work towards empowering patients through education.
Accomodations:
Will be updated as soon as link is provided. Current rate is $169 per night.
Home2 Suites by Hilton, 3150 N Central Avenue, Phoenix, AZ 85012
Event Summary:
Acromegaly Community Group
Start Date: Friday, October 16, 2026
End Date: Sunday, October 18, 2026
Last Day to Book: September 23, 2026
Hotel offering your special $169 group rate: Home2 Suites by Hilton
*Breakfast will be provided to hotel guests. Lunch (Saturday) will be provided at Barrow Neurological Institute.
Travel & Cost Assistance
Acromegaly Community is committed to ensuring that financial barriers do not prevent patients from accessing education and support.
A limited number of travel scholarships are available for members who demonstrate financial need. To be considered, applicants must complete a brief scholarship application and sign a participation agreement outlining the terms of the award.
We firmly believe that education is one of the most powerful tools in managing a rare condition — and we are here to help make that possible.
We look forward to seeing you there!
Note: You must be a current member in good standing to attend any of our programming.
Sample agenda is from our 2024 meeting with Barrows, will update and add even more speakers as we work on the schedule.
Friday
🕑: 05:00 PM - 07:00 PM
Meet and Greet - Sonntag Pavilion Meeting Space
Saturday
🕑: 08:00 AM - 08:10 AM
Saturday Welcome
🕑: 08:10 AM - 08:30 AM
AI project for earlier diagnosis of Acromegaly
Host: Michael Cusimano, MD, MHPE, FRCS, DABSNS, PhD, FACS
🕑: 08:30 AM - 08:45 AM
Sponsorship Videos
🕑: 08:45 AM - 10:30 AM
Endocrinology/Neurosurgery
Host: Kevin Yuen, MBChB, MD, FRCP (UK), FACE, FEAA
Info: Overview of acromegaly with Dr. Kevin Yuen with clinical guidelines to treat. Zoom in from the Operating Room with live pituitary surgery with Dr. Andrew Little.
🕑: 10:30 AM - 12:00 PM
Physiatry
Host: Grace Maloney, MD
Info: A physiatrist is a physician who has received specialized training in physical medicine and rehabilitation. Physiatry is the branch of medicine emphasizing the prevention, diagnosis, treatment and rehabilitation of disorder that produce temporary or permanent functional impairment.
🕑: 12:00 PM - 01:00 PM
Lunch Provided
🕑: 01:00 PM - 02:00 PM
Physical Therapy
Host: Janice Zook P.T., OCS, CSCS
Info: What role does physical therapy play in improving health and wellness of acromegaly patients and how it can improve quality of life.
Tracks - Choose your track!
🕑: 02:00 PM - 02:50 PM
Track 1: Secondary Adrenal Insufficiency- Eller Meeting Room
Host: Kevin Yuen, MBChB, MD, FRCP (UK), FACE, FEAA
Info: Patients can deal with hormone deficiencies post surgery. Learn how to manage cortisol properly if low post surgery, radiation or apoplexy.
🕑: 02:00 PM - 02:50 PM
Track 2: Ophthalmology- Sonntag Meeting Room
Host: Karl Golnik, MD
Info: Pituitary tumors can press on the optic nerve leading to a loss peripheral vision. Learn more about the impacts of visual loss.
🕑: 02:00 PM - 02:50 PM
Track 3: Weight Management- Goldman Meeting Room
Host: Tirissa J. Reid, M.D., DABOM
Info: Acromegaly affects an individuals metabolism, which often leads to excessive weight gain. Hear how weight management can improve quality of life.
🕑: 03:00 PM - 03:50 PM
Track 1: Dentistry- Eller Meeting Room
Host: J. Michael Thompson, DDS
Info: Get a better understanding of how acromegaly changes teeth, jaw bones and what can be done to improve.
🕑: 03:00 PM - 03:50 PM
Track 2: Radiation Oncology- Sonntag Meeting Room
Host: William Kennedy, MD
Info: What role does Radiation Oncology play in the treatment of acromegaly and when should you choose this option.
🕑: 03:00 PM - 03:50 PM
Track 3: Rheumatology- Goldman Meeting Room
Host: David Clemmons, MD
Info: Learn how degenerative arthropathy and other rheumatologic syndromes effect bone, mineral metabolism and bone disease associated with acromegaly.
🕑: 04:00 PM - 04:50 PM
Track 1:Dematology- Eller Meeting Room
Host: Hershel Dobkin, MD, FAAD
Info: Oily skin with large pores, excessive sweating, pigmented skin tags, and psoriasis are some common dermal symptoms. What can be done to subside these symptoms.
🕑: 04:00 PM - 04:50 PM
Track 2: Rheumatology- Sonntag Meeting Room
Host: David Clemmons, MD
Info: Learn how degenerative arthropathy and other rheumatologic syndromes effect bone, mineral metabolism and bone disease associated with acromegaly.
🕑: 04:00 PM - 04:50 PM
Track 3: Weight Management- Goldman Meeting Room
Host: Tirissa J. Reid, M.D., DABOM
Info: Acromegaly affects an individuals metabolism, which often leads to excessive weight gain. Hear how weight management can improve quality of life.
🕑: 05:00 PM - 05:15 PM
Closing/Announce any evening events
Sunday
🕑: 08:00 AM - 08:05 AM
Sunday Welcome
🕑: 08:05 AM - 09:00 AM
Sleep Specialist
Host: Joyce Lee-Iannotti, MD
Info: Obstruction of the upper airway may develop due to enlargement of the tongue and thickening of the tissues of the larynx causing sleep apnea. How can a sleep specialist help?
🕑: 09:00 AM - 10:00 AM
Headache Expert
Host: Kerry Knievel, DO
Info: What causes headaches in acromegaly patients? How can a headache expert help provide relief and solutions.
🕑: 10:00 AM - 10:30 AM
Emotional Support
Host: Catherine Jonas, CMC, LMFT
Info: What kind of emotional support do Acromegaly patients need? What about friends and loved ones? Listen as we discuss techniques and options to provide needed support.
🕑: 10:30 AM - 11:45 AM
Counseling Breakout Groups- Women, Men, Family/Loved Ones
Host: Catherine Jonas, Jonathan Kahan, Karen Strutynski
🕑: 11:45 AM - 12:00 PM
Closing/Survey/Thank Sponsors
Event Venue & Nearby Stays
Barrow Neurological Institute, 2910 N 3rd Ave, Phoenix, United States
USD 0.00
