About this Event
Rare: A Rare Disease Revolution is an in-person documentary film screening bringing people together around rare diseases. Join the conversation and be part of the revolution!
Agenda
🕑: 05:00 PM
Documentary Screening
Info: Princeton University and students in FRS171: Neurons & Narratives invite you to join us for a screening of Rare: A Rare Disease Revolution. RARE tells the story of 5 rare disease families' diagnostic and cure odysseys as they fight for therapies against a ticking clock. This screening is supported by Princeton's Program for Community-Engaged Scholarship (ProCES) and First-Year Seminars (FRS) Program.
🕑: 06:30 PM
Panel discussion: Where does the rare disease revolution go from here?
Info: Director Lainey Moseley, Princeton University Professors: Dan Notterman, MD, Becky Burdine, PhD, and Britt Adamson, PhD, and KIF1a.org Parent Advocate Naomi McMackin, MD. Moderated by Heather Christie, PhD
🕑: 07:15 PM - 08:00 PM
Reception
Event venue & nearby stays
Lewis Thomas Laboratory, Room 003 (Ground Floor), 119 Washington Rd/Goheen Walk, Princeton, United States
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