About this Event
2027 marks a monumental milestone for our community: PTENUKI turns 10!
For a decade, we have worked to bring patients, families, and carers together across the UK and Ireland. To celebrate ten years of support, connection, and progress, we are hosting our biggest Patient Day yet.
We warmly invite our entire community to join us on Saturday 12th and Sunday 13th June 2027 at the near Warwick for a whole weekend dedicated to connection, learning, and celebration.
Here is what we have planned:
Saturday 12th June | 10th Anniversary Party
- Hotel Check-in: From 3:00 PM (giving you plenty of time to unpack, settle in, or visit the hotel pool before the party).
- Evening Celebration on the Terrace (5:00 PM – 9:00 PM): Kick off the weekend with a family evening featuring:
- Welcome Drinks: A glass of bubbles on arrival (or soft drinks)
- Delicious Food: A full evening BBQ and children’s options
- Family Fun: Children’s entertainment and music throughout the evening
- Ticket Prices: Thanks to charity subsidisation, adult tickets are £25 and children’s tickets are £10.
Sunday 13th June (10:00 AM – 4:00 PM) | Free Medical Conference
Our annual conference returns with a full line-up of insights and support:
- Morning Presentations: Updates directly from the PTENUKI team, the PTEN Research Foundation, and medical and research experts sharing their latest clinical developments
- Afternoon Breakout Sessions: Tailor your day with an afternoon of specialised breakout sessions filled with up-to-date medical insight.
- Kids' Club: Dedicated children’s entertainment will run throughout the day to keep young ones happy and engaged.
- Cost: Free for everyone to attend (includes tea, coffee, and lunch)
Venue & Accommodation Set in the Warwickshire countryside, the Chesford Grange Hotel offers a spa and swimming pool to enjoy during your stay.
- Discounted Rooms: Anyone booking tickets for the Saturday night party can access a discounted accommodation rate with the venue (booking codes and instructions will be provided upon ticket confirmation). All prices include breakfast.
- Single room - £130
- Double room - £144
- Family rooms (sleeps 4) - £178
Travel Bursaries Available We want as many people in our community to attend as possible, and we never want travel costs to stand in the way. As in previous years, we are pleased to offer a travel bursary for anyone where travel or transport costs are a limiting factor.
Ticket types available to you
Celebration package - This includes the Saturday evening celebration meal, entertainment AND the medical conference on Sunday.
- Adult Celebration package - £25
- Child Celebration package - £10
Conference only ticket - This includes admission to the Sunday patient day conference and talks with lunch and refreshments.
- Adult Sunday conference only ticket - £0
- Child Sunday conference only ticket - £0
We Can’t Wait to See You! Whether you can join us for the whole weekend or just Sunday’s free conference, we would love to see as many faces, old and new, as possible. Mark your calendars, and stay tuned for booking details coming very soon!
Event venue & nearby stays
Chesford Grange Hotel, Chesford Bridge, Warwick, United Kingdom
Concerts, fests, parties, meetups — all the happenings, one place.