About this Event
We invite you to attend our 5th International Limb Girdle Muscular Dystrophy Conference, dedicated to finding safe and effective treatments for all forms of LGMD. Patients and families are central to this conference and every LGMD patient and caregiver is greatly encouraged to attend to help shine the light on the vast number of patients living with LGMD. We are pleased to be working closely with GRASP LGMD, a consortium of leading neurologists internationally, who will collaborate at our event along with major biotech companies on the cutting edge of emerging research. The overall mission of this conference is to provide momentum to developing treatments by bringing together key stakeholders in the field. The conference also focuses on making information accessible to our patient community while providing opportunities for social support, advocacy, and symptom management to help improve quality of life for individuals living with LGMD.
Conference Information:
When: Friday, July 23 - Sunday, July 25, 2027
Where: Hyatt Regency Orlando
Conference registration: Friday (7/23), 2:00-4:00 PM. Please see our conference registration desk on site to get your name tags and swag bags between 2:00-4:00 PM. (Conference registration is separate from hotel check in.)
Our first event is the Friday reception, welcoming all attendees, at 6:30 PM.
Hotel Reservations & Info:
Hyatt Regency Orlando
9801 International Dr, Orlando, FL 32819
(407) 284-1234
Our group rate is $199.00/night (+ $10.00 reduced resort fee) for a total of approximately $211/night (+ taxes and incidentals).
**You will be provided with the hotel booking link after ticket checkout!**
Area Attractions:
Enjoy easy access to Orlando’s world-famous theme parks, all located within approximately 15 minutes of the hotel. Multiple nearby hotels are also available for overflow accommodations, if needed.
Event venue & nearby stays
Hyatt Regency Orlando, 9801 International Drive, Orlando, United States
Concerts, fests, parties, meetups — all the happenings, one place.