Enduring Symptoms: From patient voices to solution-driven care

Wed Jun 24 2026 at 09:30 am to 05:00 pm UTC+01:00

Royal College of Physicians | London

Forgotten Patients, Overlooked diseases
Publisher/HostForgotten Patients, Overlooked diseases
Enduring Symptoms: From patient voices to solution-driven care
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Explore fresh ideas, expert insight and practical solutions to improve understanding, care and outcomes for people with enduring symptoms.
About this Event

This one-day conference will bring together leading voices from healthcare, academia, policy, and lived experience to explore the complex challenges of enduring symptoms and the opportunities for meaningful change. Through expert presentations, practical insights, and thought-provoking discussion, the programme will examine current understanding, highlight gaps in care, and showcase innovative approaches that can improve outcomes for patients. Attendees will leave with fresh perspectives, greater awareness, and actionable ideas to help shape more compassionate, evidence-based, and solution-driven care.

The topics to be include are:

  • The size and diversity of enduring symtptoms and why the problem is challenging
  • Models of care generally do not serve patients with enduring symptoms
  • A practical guide to managing patients with complex and challenfing symptoms
  • A conversation between a doctor and patient both with anti-phospholipid syndrome
  • Jess's Rule, will this make a difference
  • The importance of patient stories- an underused resorce in scientific research
  • Where does the patient journey go wrong
  • The importance of acknowledging and making diagnostic doubt visable
  • Enduring symptoms- The psychiatrist's view
  • Enduring symptoms in A&E
  • Is genetic testing the answer
  • The woman's voice
  • Are specialist clinics the answer
  • The challenge of terminology in enduring symptoms
  • Health Economic aspects of enduring symptoms

Agenda

πŸ•‘: 09:00 AM - 09:30 AM
Registration
πŸ•‘: 09:30 AM - 09:40 AM
Welcome and introduction to the topic of enduring symptoms.
Host: Dr Adrian Tookman
πŸ•‘: 09:40 AM - 10:00 AM
The patient journey and how stories can illuminate what really matters
Host: Dr Pip Hardy
πŸ•‘: 10:00 AM - 10:20 AM
Navigating the Dynamic through the lens of Anti Phospholipid Syndrome
Host: Tracy Jallow BEM
πŸ•‘: 10:20 AM - 10:40 AM
Where does the patient journey go wrong
Host: Christianne Forrest
πŸ•‘: 10:40 AM - 11:00 AM
Ethics of care for people with enduring symptoms
Host: Ass. Prof. Chantal Patel
πŸ•‘: 11:00 AM - 11:10 AM
Discussion
πŸ•‘: 11:10 AM - 11:30 AM
Break
πŸ•‘: 11:30 AM - 11:45 AM
Patient data and Jess’s Rule; who will it help
Host: Richard Stephens
πŸ•‘: 11:45 AM - 12:15 PM
The pain consultation and how to survive it
Host: Dr Benjamin Ellis MBE
πŸ•‘: 12:15 PM - 12:45 PM
Enduring symptoms; The psychiatrist's view
Host: Dr Amrit Sachar
πŸ•‘: 12:45 PM - 01:00 PM
Terminology and the importance of making diagnostic doubt visible
Host: Dr Adrian Tookman
πŸ•‘: 01:00 PM - 01:40 PM
Lunch
πŸ•‘: 01:40 PM - 02:10 PM
Keynote: Problems and Solutions of Care for People with enduring symptoms
Host: Dr John Dean
πŸ•‘: 02:10 PM - 02:40 PM
Enduring symptoms: Indicators of disease and/or entities in their own right.
Host: Prof. Chris Burton
πŸ•‘: 02:40 PM - 03:00 PM
Enduring symptoms; A neurologists view
Host: Dr Ania Crawsaw
πŸ•‘: 03:00 PM - 03:20 PM
Break
πŸ•‘: 03:20 PM - 03:50 PM
Enduring symptoms. Why are women disproportionately affected?
πŸ•‘: 03:50 PM - 04:50 PM
Panel Discussion: How do we move the issue of enduring symptoms forward?
Host: Prof. Bill Noble

Info: Practical suggestions, resource issues, research, medical education.


πŸ•‘: 04:50 PM - 05:00 PM
Summary and close
πŸ•‘: 05:00 PM - 05:15 PM
Finish
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Event Venue & Nearby Stays

Royal College of Physicians, 11 Saint Andrews Place, London, United Kingdom

Tickets

GBP 50.00 to GBP 150.00

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