About this Event
Welcome to the Southeast Regional Fibromuscular Dysplasia (FMD) Patient Conference!
Are you or a loved one living with Fibromuscular Dysplasia (FMD)? We invite you to a special conference dedicated to empowering patients and families with knowledge and hope.
What to Expect:
- Expert Insights: Hear from leading specialists in FMD, including Dr. Esther Kim, Director of the Center for Women's Cardiovascular Health at Atrium Health Sanger Heart & Vascular Institute.
- Patient Stories: Connect with others who share your journey and gain strength from their experiences.
- Q&A Panels: Get your questions answered by a panel of experts dedicated to FMD care.
- Meals Provided: Your registration fee covers both breakfast and lunch during the event.
Why Attend?
This symposium is designed to provide valuable information in a supportive and engaging environment. Whether you're newly diagnosed or have been managing FMD for years, you'll find resources and connections to help you navigate your health journey.
Session and Talks:
FMDSA: Opening Remarks
Patient Story: From Uncertainty to Hope
Finding Resilience in the Face of Uncertainty
Arterial Anatomy and Physiology
Arterial Diseases: Stenosis, Aneurysm, Dissection, FMD
Epidemiology of FMD: Who, When, What?
Patient Story: The long journey to diagnosis
FMD Signs and Symptoms
Common Cardiovacular Tests and Their Use
Genetic Testing: Who Should Be Tested and What Do the Results Mean?
Complications of FMD: How Do I Know If I am Having One?
Medications for FMD: Common Prescriptions and Their Purpose
Management of Blockages, Aneurysms, and Dissections
SCAD: Introduction and Acute Management
SCAD: Considerations in the Clinic
The iSCAD Registry: most recent research updates
SCAD Alliance: Advocacy, Research, and Hope
Breakthroughs in Genetic Research in FMD
Top 10 from the FMD Consensus Statement
Research From the US FMD Registry
FMDSA: Two Decades of Supporting Patients with FMD
Hotel Block Information:
Fairfield Inn & Suites Charlotte Uptown
- Dates: Fri, Aug 15 - Sat, Aug 16
- $134.00 per night & $10.00 for parking
- Last Day to Book: Saturday, July 26, 2025
Event Venue & Nearby Stays
Atrium Health Sanger Heart & Vascular Institute, Sandra and Leon Levine Auditorium, 1237 Harding Place, Charlotte, United States
USD 25.00
