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Registration and information at https://www.cincinnatichildrens.org/service/n/neurofibromatosis/patient-resources The Neurofibromatosis (NF) Program is excited to announce the return of our annual "in person" NF Conference for Patients and Families!
This educational event will be held on Saturday, September 27, 2025 in the Sabin Auditorium (location D, first floor) at the main
campus of Cincinnati Children's Hospital, 3333 Burnet Avenue Cincinnati, Ohio 45229.
Topics and Agenda:
8:30 am Registration and coffee/tea
9:00 am Welcome and NF Team Introduction - Peter de Blank, MD
9:20 am General Overview of NF1 - Stephen Gilene, MD
9:40 am General Overview of NF2/Schwannomatosis - Trent Hummel, MD
10:00 am Imaging in Neurofibromatosis - Blaise Jones, MD
10:20 am Coffee break
10:45 am Keynote Address: Treatment of plexiform neurofibromas in NF1:
Who? When? How? - Andrea Gross, MD
11:15 am Neurocognition, Learning Needs, and Neuropsychology Testing -
Thea Quinton, PhD, Zachary Wood, BMCP fellow
11:35 am Current and upcoming NF clinical trials - Peter de Blank, MD
12:00 pm Lunch and Networking
1:00 pm Patient perspective
1:30 pm Question and Answer Breakout Sessions
1. New to NF, including how to explain diagnosis to siblings
2. School Aged Child
3. Living with NF1/Schwannomatosis (NF2)
4. Practical Considerations of NF Treatment
2:30 pm Conference Adjourned
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Event Venue & Nearby Stays
Cincinnati Children's Hospital, 3333 Burnet Ave,Cincinnati, United States
Tickets
