About this Event
Join Us at the Carry Hope Forum 2026!
Carry Hope Forum 2026 is a full-day gathering of voices across healthcare, policy, research, industry, and lived experience, united by one shared goal: improving the quality of life for individuals and families living with rare diseases.
From early and accurate diagnosis to equitable access to therapies, ethical use of health data, and holistic lifelong support, the forum spotlights how innovation and collaboration can drive real change. Through keynote addresses, expert panels, and powerful patient and caregiver stories, participants will gain insights into both system-level solutions and on-the-ground realities.
More than a conference, this forum is a platform to connect silos, exchange ideas, and shape a more inclusive and sustainable rare disease ecosystem in Singapore — where no family journeys alone.
Agenda
🕑: 09:15 AM - 09:30 AM
Welcome Remarks
Host: Mr Phua Wee Seng
Info: Executive Director & Chief Rare Advocate, Rare Disorders Society (Singapore)
🕑: 09:15 AM - 09:30 AM
Opening Remarks
Host: Dr Fereen Liew
Info: Deputy Director-General of Health (Appropriate and Value-Based Care) & Executive Director, Agency for Care Effectiveness
Ministry of Health, Singapore
🕑: 09:40 AM - 10:10 AM
Patient and Caregiver Journey
Host: Ms. Jasmine Lee
Info: Caregiver of Sarah, Undiagnosed
🕑: 10:10 AM - 10:25 AM
Tea break and Networking
🕑: 10:25 AM - 10:45 AM
ASEAN Rare Disease Policy Forum: Overview and Pathways to Better Rare Disease
🕑: 10:45 AM - 11:15 AM
3D AI Reads Faces to Save Lives
Host: Dr Koh Ai Ling
Info: Consultant, Genetic Service, KK Women’s and Children’s Hospital
🕑: 11:15 AM - 11:45 AM
Precision Medicine for Rare Diseases
Host: Clin Assoc Prof Tan Ee Shien
Info: Head & Senior Consultant, Genetic Service, KK Women’s and Children’s Hospital
Chief Innovation Officer, Precision Medicine Research, Singapore (PRECISE)
🕑: 11:45 AM - 12:30 PM
Panel Discussion: Uniting Stakeholders to Accelerate Early Access
Info: Moderator: Mr Rajakanth R, Board Member, Rare Disorders Society (Singapore)
🕑: 12:30 PM - 01:30 PM
Lunch and Networking
🕑: 01:30 PM - 02:00 PM
Lessons from Rare Diseases
Host: Adj Assoc Prof Chin Hui-Lin
Info: Senior Consultant, Division of Genetics and Metabolism, Department of Paediatrics, Khoo Teck Puat - National University Children's Medical Institute, National University Hospital
🕑: 02:00 PM - 02:30 PM
Harnessing Information Content: Transforming Rare Disease Screening
Host: Dr. Tudor Groza
Info: Principal Scientist
Bioinformatics Institute / Genetics
A*STAR / KK Women’s and Children’s Hospital
🕑: 02:30 PM - 03:00 PM
Breaking Silos to Advance Health Outcomes & Ensuring Data Privacy and Security
Host: Ms. Koh Mingshi
Info: Director, TRUST Office, MOH Office for Healthcare Transformation
🕑: 03:00 PM - 03:30 PM
Advancing Equity in Healthcare Through Patient-Centred Research
Host: Ms. Ai-Ling Sim-Devadas
Info: Deputy Director, Office of Patient Engagement Lee Kong Chian School of Medicine, Nanyang Technological University
🕑: 03:30 PM - 04:00 PM
Tea break and Networking
🕑: 04:00 PM - 04:45 PM
Panel Discussion: Balancing Privacy and Progress
Info: Moderator: Ms. Ai-Ling Sim-Devadas
🕑: 04:45 PM - 05:15 PM
Innovative Regulatory Approaches to Accelerate Access to Therapies
Host: Asst Prof Khoo Yoong Khean
Info: Duke-NUS Centre of Regulatory Excellence
🕑: 05:15 PM - 05:30 PM
Closing Remarks
Host: Mr Phua Wee Seng
🕑: 05:45 PM - 06:00 PM
Networking
Event Venue & Nearby Stays
Furama RiverFront, 405 Havelock Road, Singapore, Singapore
SGD 104.18
