About this Event
Around 1 in 5000 people in Scotland has Huntington’s disease. 1100 people have been diagnosed with the disease with a further 4000 – 6000 at risk of having inherited it from their parents. So, it is thanks to amazing people like you that we can continue to be there for each and every one of these people and their families.
We will choose the people who we feel will raise the most money for Scottish Huntington’s Association, so we can continue to support the 1100 people and their families each year. The information you provide us in this form will help us make our decision, so please be honest and provide as much detail as possible as this will increase your chances of gaining one of our charity places. If you are successful you will be required to pay a non-refundable registration fee of £50 and raise a minimum of £2000 for Scottish Huntington’s Association. By completing this form you are agreeing to these terms. The completed application forms will be reviewed with successful applicants being notified.
What support will you receive?
By joining #TeamSHA you will receive continued information to support you reach your £2000 fundraising target including:
• A chat with the Community fundraiser.
• Your very own running vest
• Regular emails to provide you with training and fundraising tips.
How you're fundraising will make a difference:
£20 helps pay for immediate clinical support to a patient over the telephone
£50 helps take a young person out for coffee to offer emotional support and respite from their caring responsibilities.
£100 provides over two hours of specialist clinical support to patients who are losing the ability to walk, talk, swallow, make decisions or care for themselves.
£500 would help a young person to attend our annual summer camp, giving them an escape from their emotional burden and caring responsibilities, and the opportunity to meet other young people living with HD.
£ 1000 would provide 12 months intensive support to an HD affected family, coordinating social work, dieticians, physiotherapists, speech and language, financial planning and youth service specialists
If you have any questions please email [email protected] .
Event Venue & Nearby Stays
Hyde Park, Hyde Park, London, United Kingdom