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An all new one of a kind event! Ski4Briar is a tournament of small teams featuring adaptive skiers- a weekend full of community and inclusion through a shard love of watersports. Each team will have about 15 skiers, chosen by a captain. The team will perform for 25-30 minutes, purely for the crowd! Bonus- each team will feature an adaptive skier with Angelman Syndrome! We will have fun, innovative rankings and awards creating a memorable experience for all involved.
Ski4Briar is a charitable event raising awareness and funds for Angelman Syndrome. Benefactor- Foundation for Angelman Syndrome Therapeutics. Our daughter, Briar, lives and thrives with Angelman Syndrome.
AS is a neurogenetic disorder affecting approximately 1:15,000 live births. This syndrome involves the silencing, mutation, or deletion of a specific gene, causing a lack of production of the UBE3A protein. Due to the lack of this protein, individuals with AS can have gross and fine motor challenges, sleeping disorders, epilepsy, are non-speaking, cognition delays, and more. Due to wonderful doctors, researchers, and donors within the community of AS, there are multiple clinical trials underway, several in the final phase of drug development! AS is not a one cure fixes all, as there are many types and locations of the mutation on the gene. Every dollar raised goes directly to the organizations responsible for steam-rolling these transformative treatments, bringing hope to our families and improving the quality of life of our loved ones.
More information to come!
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Event Venue
Lance Park, Twin Lakes, Wisconsin., United States
Tickets
Concerts, fests, parties, meetups - all the happenings, one place.
