Rare Disease Day 2025 Scotland Reception

Genetic Alliance UK are excited to be hosting a Rare Disease Day Reception in Scotland!

Rare Disease Day is an annual international day aimed at raising awareness and highlighting the needs of people with rare conditions. The community will be coming together to recognise the day with parliamentarians, health professionals, policymakers, researchers, people affected by rare conditions and support organisations at the Scotland Rare Disease Day reception.

At each event we will see the launch of ‘More than you can imagine: anthology of rare experiences’. We will also hear from people with rare conditions and leading policy-makers.

Before registering your interest, please note:

• This event will take place on the evening of Tuesday18 March 2025, 18:00-20:00.
• Due to capacity of the venue, we are currently limiting the number of tickets issued to two per organisation.
• More tickets may become available so please register your interest to keep updated, even if the event has sold out.
• If you are unable to attend, please cancel your registration for the event to allow others to attend.

If you have any queries, please email [email protected].

This Rare Disease Day event is run by Genetic Alliance UK as part of our nationwide Rare Disease UK campaign.

All of our information, policy and campaign events are completely free to attend. However, any donation, no matter what size, will help us to continue our mission to ensure that people and families living with rare, genetic or undiagnosed conditions have access to a final diagnosis, coordinated care and specialist care and treatment.

Genetic Alliance UK privacy policy.

Event Venue & Nearby Stays

Scottish Parliament Building, Horse Wynd, Edinburgh, United Kingdom