About this Event
Patients with neuromuscular diseases such as Duchenne muscular dystrophy and spinal muscular atrophy are surviving much longer thanks to advances in disease-modifying therapies and clinical care. Because of this, many cases now require a transition of care from pediatric providers to adult providers.
Against that backdrop, we invite you to join us for the Mohammed Haider Memorial Symposium on Transition to Adulthood for Pulmonary Care. This symposium, geared to physicians, nurses, social workers and family members, is endowed by the Haider Family in honor of their son, Mohammed, a former patient of Hank Mayer, MD.
The symposium will explore the process, management and challenges of transitioning care for patients with neuromuscular disease from pediatric to adult providers. The presentations will be based on the development of the current transition program between the Children’s Hospital of Philadelphia and the Hospital at the University of Pennsylvania, and the patient and family challenges of navigating that transition process. A panel discussion involving pediatric and adult members of the treatment teams as well as institutional representatives will discuss the need for transition, patient/family representatives and advocacy organizations.
Event Venue & Nearby Stays
CHOP Hub for Clinical Collaboration, 3500 Civic Center Boulevard, Philadelphia, United States
USD 0.00
