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Learn More & Register: https://rettsyndrome.org/retted-bch25Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering BCH Comprehensive Rett Syndrome Clinic updates, IRSF updates, clinical research and gene therapy, epilepsy and movement disorders in Rett, GI/nutrition, communication, community resources, a parent panel and more.
Saturday, September 13, 2025
9:00 a.m. – 5:00 p.m. ET
Boston Children's Hospital (1 Autumn Street)
Fee: $10/per person
FREE for individuals with Rett syndrome and children 12 & under.
Thank you to our sponsors, Acadia Pharmaceuticals, Neurogene & Taysha Gene Therapies for helping IRSF provide educational resources and support to families affected by Rett syndrome.
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Event Venue & Nearby Stays
Boston Childrens Hospital, Boston, Massachusetts, United States
Tickets
