In-Store: Johanna Hedva: How to Tell When We Will Die w/ Zefyr Lisowski

Event guidelines:

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• Tickets are limited to restrict capacity at our store, and each ticket will include either a copy of the featured book or a $10 Books Are Magic gift card.
• Additional copies of the book will be available for purchase at the event.
• A signing will follow the talk.
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The long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life.
In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can’t get out of bed? It was not long before this essay, “Sick Woman Theory”, became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism—a system that limits our worth to the productivity of our bodies—we must reach for the revolutionary act of caring for ourselves and others.
How to Tell When We Will Die expands upon Hedva’s paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal—from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America’s byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness—relying on and fueling ableism—to the detriment of us all.
With the insight of Anne Boyer’s The Undying and Leslie Jamison’s The Empathy Exams, and the wit of Samantha Irby, Hedva’s debut collection upends our collective understanding of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.

Johanna Hedva is a Korean American writer, artist, and musician from Los Angeles. Hedva is the author of the novels Your Love Is Not Good and On Hell, as well as Minerva the Miscarriage of the Brain, a collection of poems, performances, and essays. Their artwork has been shown internationally, and their albums are Black Moon Lilith in Pisces in the 4th House and The Sun and the Moon. They are a 2024 Disability Futures Fellow. Their essay collection, How To Tell When We Will Die: On Pain, Disability, and Doom is out in September.

Zefyr Lisowski is the author of the forthcoming Uncanny Valley Girls, an essay collection about horror movies, exes, and intimacy (Harper Perennial 2025). A 2023 NYFA/NYSCA Fellow in Nonfiction and 2023 Queer|Art Fellow, she's also the author of two poetry collections, Girl Work (Noemi Press 2024) and Blood Box (Black Lawrence 2019). Raised in the Great Dismal Swamp, North Carolina, Zefyr lives in Brooklyn and has seen grave robbers twice.

Event Venue

Books Are Magic Montague, 122 Montague Street, Brooklyn, United States