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You’re INVITED for a full day of purpose, progress, and connection!The Nerve to Cure: CMT Social + Science Day is designed for individuals and families impacted by Charcot-Marie-Tooth disease (CMT). Whether you’re newly diagnosed or have been managing CMT for years, this event brings together patients, experts, and advocates for a day of community, research, and action.
This is more than a meetup—it’s a movement.
Your participation powers CMT research forward through real-world data, biosample donations, and shared lived experiences that shape the future of care and treatment.
FREE Admission - CMT Social & Science Day @12-5pm
Fundraiser Dinner - $150 pp @5-8pm
🗓 Full-Day Schedule
12:00 PM – 3:00 PM | CMT Research + Resource Fair
Open to all families, supporters, and guests
12:00 – 12:30 PM | Check-In
Pick up your welcome packet and event schedule.
12:30 – 1:00 PM | Opening Remarks
Welcome from Dr. Ryan Castoro and a special guest speaker from the CMT community.
1:00 – 1:30 PM | Special Presentation – University of Kansas
Learn about new research and clinical insights in CMT.
1:30 – 1:45 PM | Event Orientation & Booth Instructions
Instructions for research participation and booth exploration.
1:45 – 2:45 PM | Explore the Event Zones
CMT Resource Hub
Genetic testing and counseling
Bracing and AFO solutions
Physical and occupational therapy strategies
Surgical insights
Adaptive tools and daily living gadgets
Research in Motion Zone
Learn about ongoing clinical trials
Donate blood to the CMT Biobank
Enroll in the CMT DEPLOY Natural History Study
Your participation keeps CMT research moving forward
3:00 PM – 5:00 PM | CMT Community Meet-Up
Exclusive to individuals living with CMT and their families
Location: Atkins Conference Room
An intimate, supportive space to connect and reflect with others who share the lived CMT experience. This session includes special activities just for the CMT community.
Kids Corner
OT-inspired sensory play
Adaptive books, toys, and games
Adaptive shoe try-ons
Parent Connection Circle
Connect with fellow caregivers
Speak with medical and emotional health experts
Learn practical tools for school advocacy
CMT Library Lounge
Resources on pain, fatigue, and mental wellness
Self-care and relationship guides
Books for children, teens, and parents living with CMT
5:00 PM – 8:00 PM | Evening Fundraiser Dinner
Open to all attendees
End the day with a meaningful evening of community and celebration. All proceeds support ongoing research, advocacy, and educational programs for the CMT community.
5:00 – 6:00 PM | Cocktail Hour
Mix and mingle with light refreshments.
6:00 – 6:30 PM | Dinner Served
6:30 – 7:00 PM | Hereditary Neuropathy Foundation Presentation
Learn how your support directly impacts CMT research and resources.
7:00 – 7:30 PM | NextGen Precision Health Presentation
Explore how academic and clinical innovation is driving change in CMT care.
7:30 – 8:00 PM | Dessert and Closing Remarks
Wrap up the evening with gratitude and inspiration.
Perks and Extras
Snacks and beverages available throughout the day
Free giveaways and raffle prizes
All ages and mobility levels welcome
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Event Venue & Nearby Stays
University of Missouri, NextGen @1030 Hitt St, Columbia, MO, USA, United States
Tickets
