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There is something life-changing about walking into a room where everyone “gets it.” We invite you to join us for three unforgettable days of connection and building lifelong friendships with people affected by ectodermal dysplasias and their families. Learn more and register today at www.nfed.org/fc2026This isn’t just a conference. It’s a reminder that you are not alone in this journey.
📆 3 Full Days
Thursday afternoon through Saturday afternoon filled with connection and learning
💡 Expert Sessions
Join expert-led sessions to explore ectodermal dysplasia–related symptoms and discover the latest treatment options and care strategies
🛏️ Lodging
DoubleTree by Hilton in Chesterfield, Missouri with group rate of $159/night
👯 Kays’ Kids Camp & Teens Program
Childcare with fun activities and social opportunities for all children and teens included in registration
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Event Venue
Doubletree by Hilton Hotel St. Louis - Chesterfield, 16625 Swingley Ridge Rd, Chesterfield, MO 63017-1715, United States
Tickets
Concerts, fests, parties, meetups - all the happenings, one place.
