About this Event
The Canadian MPS Society is committed to providing support to individuals and families affected with Mucopolysaccharide (MPS) and related diseases. Our bi-annual conferences give families affected by MPS & related diseases an opportunity to learn about new research, treatment and care, and to share information and experiences with other affected families and individuals. Because MPS diseases are very rare, our conferences often represent the only opportunities families have to meet others whose family members share the same disease.
The conference will take place over 3 days: the first day of the conference will consist of afternoon registration and an evening welcome reception, the 2nd day will consist of knowledge translation sessions and syndrome breakout sessions, and the 3rd day will consist of a half day of knowledge translation sessions. A music-themed child and youth program for affected children and their siblings will take place concurrent to the conference sessions with an outing to Studio Bell, the National Centre for Music.
Plenary/Knowledge Translation Sessions: These sessions represent lectures directed to parents of affected individuals and adults affected with MPS or a related disease. Topics will include key advances in disease pathophysiology, management and treatment best practices, current and upcoming research and clinical trials, educational and financial issues, and psycho-social issues such as dealing with grief and loss, adolescence, transition to adulthood, and independent living. There will also be opportunities for affected individuals to present their perspectives.
Syndrome Breakout sessions: These sessions give affected individuals and parents of affected individuals an opportunity to meet in an informal setting and share information and experiences.
Child/Youth Program: The children affected by MPS and related diseases are our inspiration and we want them to leave the conference with new friendships and memories to last their lifetimes. We will provide an entertaining program for them and their siblings in a safe environment concurrent to the Plenary/Knowledge Translation and Syndrome Breakout Sessions.
The Rare Star Awards Gala will be held on the evening of Saturday, July 22, in conjunction with our annual conference. Join us in celebrating the courage, resilience, and strength of these extraordinary families and honouring the amazing achievements of our Rare Stars that help MPS families live their lives to the fullest.
More details can be found at: www.mpssociety.ca/2023-nfc/
Event Venue & Nearby Stays
Delta Hotels by Marriott Calgary Downtown, 209 4 Avenue Southeast, Calgary, Canada
CAD 0.00 to CAD 375.00