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A FULL-DAY WORKSHOP FOCUSED ON IMPROVING THE QUALITY OF LIFE FOR INDIVIDUALS WITH DUCHENNE AND BECKER.INSIGHTFUL PRESENTATIONS ON:
STANDARDS OF CARE
Current care guidelines | disease management | quality of life
RESEARCH AND CLINICAL TRIALS
Drug development pipeline | clinical trial updates
FAMILY SUPPORT
Social-emotional wellness | caregiver support
PHYSICAL THERAPY AND MEDICAL EQUIPMENT
CureDuchenne Certified PTĀ® instruction | stretching and equipment demo
CURE DUCHENNE OPEN HOUSE
Local resources for families | equipment vendors | pharma/biotech representatives
*Breakfast and lunch are provided. Travel Assistance for eligible applicants. This Workshop is offered to the community at no charge thanks to our sponsors.
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Event Venue & Nearby Stays
The Westin Kansas City at Crown Center, One East, 1 E Pershing Rd, Kansas City, MO 64108, United States,Kansas City, Missouri
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