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Registration for the event is free and open to everyone. To register, please visit the 'ticket' link.Strengthening existing relationships and creating new connections in the undiagnosed and ultra-rare community, our in-person events aim to foster meaningful relationships where patients and families feel they belong. If you are a patient, family or community member that lives with or supports someone who has an ultra-rare condition, you are invited!
Come as you are, you are welcome!
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Event Venue & Nearby Stays
5535 Delmar Blvd, St Louis, MO 63112-3089, United States, 5549 Delmar Blvd, St Louis, MO 63112-3005, United States,St. Louis, Missouri
Tickets
