Single Ventricle Families: Join Us at The New England Aquarium

Sat Sep 20 2025 at 10:00 am to 02:30 pm UTC-04:00

Simons Theatre | Boston

Boston Children's Hospital and FUEL-2
Publisher/HostBoston Children's Hospital and FUEL-2
Single Ventricle Families: Join Us at The New England Aquarium
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Join Boston Children's Hospital for a FREE and unforgettable event bringing together Single Ventricle families (ages 8+).
About this Event

Spend the day at the New England Aquarium connecting with other Fontan and Single Ventricle families, for a special mix of educational sessions, networking opportunities, and family-friendly activities hosted by the team at Boston Children’s Hospital.


  • Admission to the aquarium, parking, and lunch are included.
  • We will have volunteers on-site to walk children (8+) around the aquarium while parents are in learning sessions.


Can't make it in person? Join virtually!

We’re offering a virtual option so families can take part in the learning and connection from anywhere. Register here to join us via Zoom instead


Agenda

🕑: 10:00 AM - 10:30 AM
Welcome Session: The Fontan at Boston (FAB) Clinic

Info: There’s no “I” in team – meet your care squad and kick off the day with inspiration and energy.


Your Health, Your Story: Understanding the Fontan Journey

Info: Fontan-Associated Liver Disease: What it means and how we manage it & Living with Single Ventricle: Mental health, neurodevelopment, and thriving through it all


Teens Topic: Real Talk & Heart Basics

Info: All Grown Up: What to know about transitioning to adult care.

Hear from patients and families who’ve been where you are—and are thriving in their adult lives.


Stay Strong: Fitness & Nutrition for a Healthier You

Info: Fontan Fitness: Why exercise is your best medicine & Eating Well: Simple nutrition tips that make a big difference


Science in Action: The Future of Fontan Care

Info: The SOURCE Registry: How your DNA is helping unlock life-changing discoveries
The FORCE Registry: Using big data and AI to personalize Fontan care
FUEL-2 Study: Can we help you run faster, longer, and stronger?
Understanding Your Heart: Computer modeling that makes it all make sense
The Biventricular Pathway: Who it helps and why it matters


🕑: 02:30 PM - 04:30 PM
AFTER: Aquarium access and time to connect with other families
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Event Venue & Nearby Stays

Simons Theatre, 1 Central Wharf, Boston, United States

Tickets

USD 0.00

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