
About this Event
Spend the day at the New England Aquarium connecting with other Fontan and Single Ventricle families, for a special mix of educational sessions, networking opportunities, and family-friendly activities hosted by the team at Boston Children’s Hospital.
- Admission to the aquarium, parking, and lunch are included.
- We will have volunteers on-site to walk children (8+) around the aquarium while parents are in learning sessions.
Can't make it in person? Join virtually!
We’re offering a virtual option so families can take part in the learning and connection from anywhere. Register here to join us via Zoom instead
Agenda
🕑: 10:00 AM - 10:30 AM
Welcome Session: The Fontan at Boston (FAB) Clinic
Info: There’s no “I” in team – meet your care squad and kick off the day with inspiration and energy.
Your Health, Your Story: Understanding the Fontan Journey
Info: Fontan-Associated Liver Disease: What it means and how we manage it & Living with Single Ventricle: Mental health, neurodevelopment, and thriving through it all
Teens Topic: Real Talk & Heart Basics
Info: All Grown Up: What to know about transitioning to adult care.
Hear from patients and families who’ve been where you are—and are thriving in their adult lives.
Stay Strong: Fitness & Nutrition for a Healthier You
Info: Fontan Fitness: Why exercise is your best medicine & Eating Well: Simple nutrition tips that make a big difference
Science in Action: The Future of Fontan Care
Info: The SOURCE Registry: How your DNA is helping unlock life-changing discoveries
The FORCE Registry: Using big data and AI to personalize Fontan care
FUEL-2 Study: Can we help you run faster, longer, and stronger?
Understanding Your Heart: Computer modeling that makes it all make sense
The Biventricular Pathway: Who it helps and why it matters
🕑: 02:30 PM - 04:30 PM
AFTER: Aquarium access and time to connect with other families
Event Venue & Nearby Stays
Simons Theatre, 1 Central Wharf, Boston, United States
USD 0.00