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🏈🎉 SHINDIG FOR SHREVE: TOUCHDOWNS FOR A CURE 🎉🏈 🗓 Saturday, September 13 | 10:30 AM – 3:00 PM
📍 Paradise Event Space
📍 24821 Commercial Ave, Unit 1, Orange Beach, AL
🎟 $85/adults, $15/children
🎉 Your ticket includes:
• Open Bar (21+)
• Food by Tee-Off at the Wharf
• Live Music
• Games on the tv’s
• Silent Auction
🏈 Join us for Shindig for Shreve, a game-day tailgate party with a heart. We’re raising critical funds for Shreve, a local 2-year-old little girl with CTNNB1 Syndrome—a devastating and incredibly rare genetic condition that impacts only 430 children worldwide. CTNNB1 is a severe neurodevelopmental disorder affecting every aspect of a patient's functioning, including their ability to walk, speak and live independently.
♿️ Shreve faces developmental delays, mobility challenges, spasticity, feeding difficulties, and behavioral struggles. There is currently no cure—but a groundbreaking gene therapy clinical trial could change her life.
❤️ We are in the final push to raise $400,000 by the end of September to fund this clinical trial. Because the syndrome is so rare, the burden of fundraising falls almost entirely on parents like us. We know that we will reach our goal because many CTNNB1 parents around the world are fundraising with all of their heart too. We have to accomplish this or the $4,500,000 already fundraised for the trial goes down the drain and the project comes to a standstill.
🍻 So come tailgate with us—have fun and help change a life. Come eat, drink, watch football, and support a life-changing cause for one incredible little girl.
🧬 All proceeds benefit CTNNB1 Foundation, a research-driven non-profit organization focused on developing and supporting gene-related treatments with the potential to benefit patients with CTNNB1 syndrome.
📲 Can’t attend? Donate or bid online!
BUY TICKETS HERE: https://givebutter.com/c/Shindigforshreve
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Event Venue & Nearby Stays
24821 Commercial Ave unit 1, Orange Beach, AL 36561, USA, United States
Tickets
