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Mark your calendars to join us February 26, 2026 at the Educational Center at the Kentucky State Capitol! We are excited to join the community together for a family-oriented event. We will have food, speakers, raffles and kid's crafts. This is an opportunity for locals with Rare Diseases to share their stories, business to show their support and to spend time with other families who have rare diseases. Please RSVP on our website. Show your support for the rare disease community with our RDD 2026 Shirt! When you wear this shirt on Rare Disease Day, you’ll get an extra raffle ticket! Get yours at https://www.tkctf.org/category/rare-disease-day
Event Speakers:
Kellie Vanasse - President of The Kentuckiana
Connective Tissue Foundation, Patient with hEDS
Robert Myrick - KY NORD Ambassador, Patient with AHUS
Sarah Teeters - Aging & Disabled Citizens for Louisville Metro Government
Roger Davis II, DPT - Manager of Therapy Services at Owensboro Health
Ben Keeton - Senior Vice President of RunSwitch PR
Abby Pike, LPCA - Psychotherapist
Melissa Raley & Katie-Ryan Fotiadis - Advocate & Chronic Illness Warrior
Kayla Eggleston - Patient with hEDS, Student in Bellarmine’s Radiation Therapy Program
Amanda Gabehart - President of Chronic Illness Alliance, Patient with GPA/Formerly Wegener’s Disease
Kristie Jesionek - National Director of Nutrition, Sales/Business Development at Optum Rx
Kristina Pond, MD - Internal Medicine Physician, Patient with hEDS
Event Raffle Sponsors:
Texas Roadhouse
Normalyte
Louisville Zoo
Southern Soirees Bakery
Thornberry’s Bakery
Danni’s Dessert
Moonstone Lashes
GM Cleaning Solutions
Made by Lex
Please email:
Kellie Vanasse
[email protected]
Emily Hamilton
[email protected]
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Event Venue & Nearby Stays
706 Capital Ave, Frankfort, KY 40601, United States
Tickets
Concerts, fests, parties, meetups - all the happenings, one place.
