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We can't wait to see you in Boston, Massachusetts, Friday July 14th-Sunday July 16th, for the annual Coffin Siris Syndrome Foundation Conference. Presenters include:
Dr. Samantha Vergano, Clinical Geneticist, Coffin-Siris Syndrome Clinic, Children's Hospital of the Kings Daughters
Dr. Gijs Santen, Head of Department of Clinical Genetics at Leiden University Medical Center
Dr. Tim Feyma, Pediatric Neurologist, Gillette Children's
Beth Liesenfeld, MOT, OTR/L, The IEP Lab
Alexandria Dunn, CFP, CTFA, Special Needs Financial Planning, Affinia Financial Planning
Rick Guidotti, Photographer and Advocate, Positive Exposure
Dr. Emily Jean Davidson, Complex Care Service, Registered Yoga Teacher, Boston Children's
Dr. Marie Reilly, Developmental Behavioral Pediatrician, Boston Children's
Sarah Budney, Milestones Speech and Language Therapy
and A Moment of Magic.
High quality care for the duration of the conference on Saturday will be provided by A Helping Hand, a professional caregiving company
Topics Include: Financial Planning, Wellness, Post-Secondary Planning, Self-Advocate Panel, Coffee Chats with Dr. V, Developmental Pediatrics, and Speech and Language
Scheduled activities include:
Dads' night, Friday night, July 14th, SPIN United by Ping Pong
Moms' night, Saturday night, July 15th, Charleston River Boat Cruise
Family activity, Sunday morning, July 16th, Boston Children's Museum
Duck Boat Tour for tweens, teens, young adults and adults with CSS
Scholarships and fundraising assistance are available for families with financial need.
If you have any questions about the conference or would like to volunteer, please email: [email protected].
More information can be found on our website: https://www.coffinsiris.org/2023conference
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Event Venue & Nearby Stays
Aloft Boston Seaport District, 401-403 D Street,Boston,MA,United States
Tickets