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Welcome to Charlie's Krewe 4th Annual Move to Cure STXBP1 Event! RSVP to our event to follow along and be on the lookout for updates leading up to the big day!
The purpose of this challenge is to raise awareness of STXBP1 Disorders, fundraise for STXBP1 research, and bring the community together for an important cause and some fun!
If you have any questions, please don't hesitate to let me know! I can't thank all of you enough for continuing on this journey with us! We can't wait to MOVE with all of you and support STXBP1!
GET YOUR STXBP1 SWAG HERE!
Charlie's Krewe T-Shirts: (WITH A NEW DESIGN!)
https://www.bonfire.com/2024-charlies-krewe-move-to-cure-stxbp1/?utm_source=copy_link&utm_medium=campaign_page&utm_campaign=2024-charlies-krewe-move-to-cure-stxbp1&utm_content=default
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Event Venue & Nearby Stays
Lafreniere Park, Al Copeland Concert Meadow in Lafreniere Park, Metairie, LA 70003, United States,Metairie, Louisiana
