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Hey everyone!! The ride will be to gisborne for a beer/drink or just a break at the telegraph hotel for approx 45min then head into port Melbourne to big Earles Bbq For a feed for anyone who’d like to join
Meeting point for the ride:
Bp truck stop cooper st Epping 9am stands up 10am 🤙🏻
$20 per bike or car
We’re hosting this charity ride to raise awareness and support for children affected by CSNK2B a rare and often devastating condition. While we generally share stories of progress and hope, the reality is that so much about CSNK2B is still unknown. Some children, like our Billy, may be doing okay right now, but others are not as fortunate. Many experience relentless, treatment-resistant (refractory) seizures that land them in the ICU, where they can lose hard earned developmental gains. With no effective treatments currently available, we urgently need to fund research. Our goal is to help scientists uncover the pathways to gene therapy and targeted treatments, giving these children a real chance at a brighter, more stable future.
Weather permitting 26th of oct will be the day
Here is the link to
The gofund me I’ve created
https://gofund.me/211cd9710
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