About this Event
Click the orange "Get Tickets" button to receive your free Alport Connect 2024 weekend ticket(s) for all Saturday, July 27th and Sunday, July 28th activities at the Gaylord Rockies Resort & Convention Center.
Alport Connect 2024 is in-person only and tickets are limited. We advise reserving your ticket(s) early! However, if your plans change and you are unable to attend, please notify [email protected] so that we can release your spot to other patients/family members.
If reserving more than one ticket, please answer the registration questions uniquely for each individual in your party. Knowing exactly who is attending, along with some important details about them, helps us plan a more successful event. Entering duplicate patron information on multiple tickets can unfortunately lead to ticket cancellation by Eventbrite.
Please note that required contact information for Teen Program registrants is solely for event-centric communications. This information will not be kept on file after the event, nor will Teens be contacted for any non-event purposes.
Alport Connect 2024 will run simultaneous programs:
An Adult Program (patients and family members ages 18 and up)
&
Two Teen Programs for patients ages 12-15 (inclusive) and for patients ages 16-18 (inclusive). Patients who are 18 years of age may choose to join the 16-18 Teen program or the Adult Program. Note: We will also offer breakout sessions for college-aged / young adults (up to age 22) as part of the Adult Program.
All programs will be facilitated by medical professionals and trained patient volunteers.
As space is limited, we cannot accommodate unaffected siblings or anyone under the age of 12.
Alport Connect 2024 will not include virtual participation.
Partial travel reimbursements will be offered on a first-come, first-served basis to all individuals who indicate they are patients and/or parents of (pediatric or adult) patients during the ticket checkout process. Eligible individuals interested in a partial travel reimbursement offer will be asked to provide the best email address to reach them with additional information before submitting their ticket order. ASF Staff will send a follow-up communication within two business days.
Educational programming & activities inside the Gaylord Rockies Resort & Convention Center.
Morning educational programming inside. Afternoon social time, activities, and lunch outside at the Gaylord Rockies Resort & Convention Center.
Alport Connect 2024 is a unique opportunity to interact with medical professionals who have expertise in our rare disease, researchers, and with other Alport syndrome patients/families from across the country. It will be a weekend of learning, connecting, and socializing as a community of patients and families. You'll leave the weekend-long event feeling empowered with knowledge and supported by new friends in the extended Alport community.
Whether you are newly diagnosed or a patient/caregiver with a long history and journey with Alport syndrome, there is a place and purpose for you at Alport Connect 2024.
Testimonials from Alport Connect 2023 attendees:
"I cannot begin to tell you how wonderful the conference was! Having been dropped into all this not quite a year ago, we felt such a sense of community & learned so much!"
"It was intentional and impactful with the information on how to handle and tackle this disease. Made us feel supported and not alone."
"I want to thank you all for an amazing weekend of love, support, hope and education (at Alport Connect 2023). I truly felt blessed to be there. You guys are amazing."
Partial Travel Reimbursement Policy for Alport Connect 2024
Click here to view Alport Connect 2024 partial travel reimbursement details.
COVID Policy for Alport Connect 2024
By registering for Alport Connect 2024, you acknowledge that Alport Syndrome Foundation and the Gaylord Rockies Resort & Convention Center reserve the right to implement COVID safety precautions based on the health climate at the time of the event, including, but not limited to, an indoor mask policy.
In the interest of everyone's health, we respectfully request that individuals experiencing COVID-19 symptoms or other illnesses please refrain from attending.
Lodging Information
Click here to view our lodging overview document.
Event Parking
Paid, self-parking is available at Gaylord Rockies for hotel patrons and visitors.
Thank you to our Alport Connect 2024 Sponsors:
Event Venue & Nearby Stays
Gaylord Rockies Resort & Convention Center, 6700 North Gaylord Rockies Boulevard, Aurora, United States
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