About this Event
***2/27/23 THIS PAGE IS UNDER CONSTRUCTION AND TICKETS/STIPENDS ARE NOT AVAILABLE AT THIS TIME. TICKET SALES WILL LIKELY BEGIN IN MID-MARCH. PLEASE DO NOT ATTEMPT TO RESERVE TICKETS UNTIL THIS MESSAGE IS REMOVED***
Alport patients and families are invited to join us at the University of San Diego for Alport Connect 2023 to be held on Saturday, October 7 and Sunday, October 8th!
Important notes about this in-person only event:
- Only open to Alport patients and family members.
- The event will NOT allow for virtual participation or be recorded.
- Limited travel stipends are now available (see additional details below).
- Phone contact details requested during checkout are for event-related communications only.
As only a limited amount of tickets are available for Alport Connect 2023, we kindly request that those interested in attending the event only reserve a ticket if they assuredly plan on attending this in-person gathering with no virtual component. If you reserve a ticket(s) and your plans change, please promptly email ASF ([email protected]) so your ticket(s) can be released to others.
Alport Connect 2023 is a unique opportunity to interact with medical professionals who have expertise in our rare disease, researchers, and with other Alport syndrome patients/families from across the country. It will be a weekend of learning, connecting, socializing and getting empowered as a community of patients and families. You'll leave the weekend-long event feeling empowered with knowledge and supported by new friends in the extended Alport Community.
Saturday, October 7th:
University of San Diego Campus. Three separate educational program tracks for adults, teens, and children (ages 7-12). All programs will run simultaneously and are facilitated by medical professionals and trained patient volunteers.
Sunday, October 8th:
Bring the entire family to enjoy social activities and light refreshments on a beautiful San Diego beach while you get to know your new friends in the Alport Community.
Whether you are newly diagnosed or a patient/caregiver with a long history and journey with Alport syndrome, there is a place and purpose for you at Alport Connect 2023.
“Go. Just go. Do whatever you can to attend, and bring the whole family. It was very helpful not only to my teenage son, but also incredibly helpful for me and my husband as parents, and my adult son who does not have Alport syndrome. It helped him understand what his brother is going through, and how to support him. It brought us closer as a family.”
-Alport Patient Mother and prior Alport Connect attendee
Travel Stipend Policy Alport Connect 2023
(Stipends available until funds up to $20,000 are reserved, with priority given to patients living in the U.S.)
Using Google Maps from home address to event site address:
$150 for each participant traveling 100-249 miles
$300 for each participant traveling 250-749 miles
$500 for each participant traveling 750 miles or more.
Travel for participants 13 years of age and older.
Total not to exceed $1,000 per household in order to distribute travel stipends as widely as possible.
Stipends to be confirmed upon ticket reservation for the event. Checks will be provided in person at the end of the day on Saturday, October 7, 2023.
Lodging Information
***Coming Soon***
Event Parking
Free parking is available on the University of San Diego campus.
COVID Safety
By registering for Alport Connect 2023, you acknowledge that Alport Syndrome Foundation and the University of San Diego event space reserves the right to potentially implement additional COVID safety precautions based on the health climate at the time of the event. This may include, but is not limited to indoor mask mandates and social distancing during portions of the weekend event.
Event Venue & Nearby Stays
Hahn University Center (University of San Diego Campus), Alcala Park Way, San Diego, United States
USD 0.00