Advertisement
Join us for the Action for BPAN Charity Golf Day at Burhill Golf Club on Thursday, 11th September 2025!We’re raising funds to help children and families affected by BPAN a rare neurodegenerative condition that begins in childhood, causing severe seizures, developmental delays, as it progresses, children develop symptoms like Parkinson's and early dementia, gradually losing speech, movement, and unfortunately their lives are cut short.
As parents ourselves of children diagnosed with BPAN we are doing everything in our power to give them a better future. We are working with Great Ormond Street Hospital and UCL to support promising gene therapy research, aiming to raise £2.3 million to move this vital treatment into human trials.
What’s included:
• 18 holes on Burhill’s New Course (shotgun start)
• Breakfast rolls on arrival
• Fun competitions: Longest Drive, Nearest the Pin, Trick Shot Challenge
• Live professional trick shot show
• BBQ and prize giving
• Hole-in-one prizes on every par 3 including a main prize of £50,000 towards a Mercedes Benz
• Silent & live auction with amazing prizes
Not a golfer? Non-golfing tickets are available join us for the BBQ, enjoy the entertainment, and take part in the auctions and fundraising activities.
Every ticket, every swing, and every bid brings us closer to effective BPAN treatments. Reserve your place with a £50 deposit:
https://uk2.emma-live.com/Actionforbpan/tickets
Sponsorship opportunities are also still available. For more information, please email [email protected].
Please share with friends, family, and colleagues and let’s make a difference together!
#GeneTherapyForBPAN #BPANAtBurhill #ActionForBPANGolfDay #TeeOffForBPAN #Top100Course
Advertisement
Event Venue & Nearby Stays
Burhill Golf Club, Burwood Road, Hersham,Walton-on-Thames, United Kingdom
