About this Event
The ELSI Node is pleased to invite researchers, healthcare professionals, policymakers and patient support groups to share experiences, cases, and insights on the Ethical, Legal, and Social Issues (ELSI) surrounding rare conditions at the 2nd ELSI Conference, hosted at Cardiff University UK.
This free one-day conference will explore the ethical, legal and social issues surrounding rare disease research and clinical practice, with a focus on how ethics can be embedded alongside the mainstreaming of genomics across clinical specialties.
The conference will bring together speakers and delegates from across the Rare Disease Research Community Network and the ELSI Node Partnership.
Please note that we are unable to cover costs for travel, accommodation and subsistence to general delegates, i.e. attendees who are not presenting as a plenary speaker or panel members.
About the ELSI Node
The ELSI Node is part of the Rare Disease Research UK Network and focuses on the ethical, legal and social implications of rare disease research and genomic medicine. Further information about ELSI can be found: https://rd-research.org.uk/node/elsi/
2nd ELSI Conference: Mainstreaming the Ethics alongside the Genomics in Rare Disease Research and Clincial Practice
Programme Highlights
ELSI Node Research Updates
Research Node updates from across the ELSI Node Partnership [The University of Manchester, The University of Oxford and Cardiff University]
PPIE Perspectives
PPIE dedicated session exploring perspectives from Genomics Partnership Wales, including discussion around lived experience, communication and engagement in genomic medicine.
Keynote Presentations From
- Prof. Adam Hedgecoe - Professor of Social Science, Cardiff University
- Dr. Janneke Kuiper - Postdoctoral Fellow, Centre for Sociological Research, KU Leuven
- Dr. Celine Lewis - Senior Behavioural Scientist, University College London
Specialty Clinical Training Needs Workshop
Presentation of findings from Cardiff University examining specialist training needs for mainstreaming genomics across clinical specialties. Followed by a discussion-focused interactive workshop.
Event Venue & Nearby Stays
Glamorgan Building, King Edward VII Avenue, Cardiff, United Kingdom
GBP 0.00
