2025 Patient and Family Neurofibromatosis and Schwannomatosis Symposium

Welcome to the 2025 Patient & Family Neurofibromatosis and Schwannomatosis

Symposium!

Date: May 10, 2025

Location: Simches Research Center, Massachusetts General Hospital

Massachusetts General Hospital, in collaboration with Boston Children’s Hospital's Neurofibromatosis Program, invites you to the in person 2025 Patient & Family Neurofibromatosis and Schwannomatosis Symposium. Learn about the latest research and clinical trials, connect with other families, ask questions, and meet the experts.

The agenda will include:

• Meet and Greet with lunch from 11am-noon

• Talks and breakout sessions from noon-3:30pm

> •Keynote talks from Drs. Bruce Korf and Bradley Welling

>• Role of nurse practitioners in NF and SWN patient care

>• Highlights from Neurofibromatosis Northeast and Children’s Tumor Foundation

> • “Ask the Experts” sessions

• Tours of NF science laboratories from 3:30-5pm

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If you require any special accommodations, please contact the coordinators listed below

Parking and lunch are included with the $20 registration fee per family. Please bring your parking ticket to the event for parking validation.

(Parking is at Charles River Park Garage. Please enter on 207 Cambridge Street, Boston, MA 02114)

We are holding rooms at the Wyndham Hotel, Boston (Beacon Hill) on May 9th and 10th at a reduced rate of $359/night through April 9, 2025. For reservations, please click HERE or call (877) 999-3223 and refer to the MGH Patient & Family Neurofibromatosis (NF) and Schwannomatosis Symposium and/or ID #: 0525MGHNEU

***For assistance with shoulder nights or if you require additional information, please call the hotel directly at 617.742.7630.

*Other questions?

Contact David Bonilla at [email protected] and Leah Hesse [email protected]

This event is made possible with the sponsorship from the Children’s Tumor Foundation and NF Northeast. For more information, please visit www.ctf.org or www.nfnortheast.org

Event Venue & Nearby Stays

Simches Research Center, 185 Cambridge Street, Boston, United States